The Fix

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Kenroy Foxe leaves his basement apartment in north Brampton, hops into his beat-up Honda and drives south for an afternoon shift at the nursing home where he will inevitably get punched in the head.

Kenroy is tired of being a human punching bag, taking jabs from residents. It’s a job hazard, for sure, but as he weaves his car through traffic, Kenroy starts thinking about the visiting dementia guru from England. His ideas seemed subversive at first but now Kenroy wonders, could they work?

By the time he arrives at the dementia unit, Kenroy has a plan for Fred, the 89-year-old whose fists hit hard. Kenroy does something that could get him fired in another home. It works so well that word of his success grabs the attention of the home’s senior medical director, upending his long-held notions of care.

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Kenroy Foxe works in Malton Village’s Redstone unit, the site of a year-long pilot program called the Butterfly program, which aims to transform care in nursing homes. Randy Risling/Toronto Star

Kenroy’s epiphany is one of hundreds of small but momentous changes inside the Redstone unit at Peel Region’s Malton Village long-term care home. They could transform the way Ontario cares for its aging population, proving that a warm, lively nursing home is not that difficult to create.

Odds are that anyone of a certain age with serious cognitive or medical decline will end up in long-term care.

Ontario’s 630 homes are controlled by 300 provincial regulations that keep staff focused on the tasks of feeding, scheduling and cleaning, all documented for government collection. It’s a detached, antiseptic end to life. Some call it a culture of malignancy. It is the not-so-distant destination for the great mass of Boomers, who are all hurtling toward their fragile years.

In Peel Region, a couple of bureaucrats decided to take a risk on a care model that promotes, well, love. Now, Kenroy’s unit is shoving aside the old clinical ways, with plans for laughter, friendship, energy, tenderness, freedom and hope. Try collecting data on that, health ministry.

From inside Peel’s year-long experiment in nursing home radicalism, here’s how it all went down.

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Before Malton Village brought the Butterfly program to its dementia unit, Inga Cherry used to sit for hours staring out the window. Randy Risling/Toronto Star

Every day Inga Cherry sits for hours at the end of a long hallway in a locked dementia unit and stares at the cars speeding along Mississauga’s Derry Rd.

“I’m in a cage,” she says, “In a cage.”

Watching the traffic makes her feel like it’s the 1970s and she’s sliding onto the red leather seats of her Chevy Vega, silk scarf tied under her chin, driving with her daughter on a Manhattan getaway or north to Algonquin Park.

Inga’s memories tease with freedom past. She clings to those days, still dressing in her black leather pants, clutching a ruby red purse that swells with pocket mirrors, lipstick, pink nail polish and pictures of herself from 1942.

“How old am I now?” Inga asks. “Ninety-four? I never imagined it. Ninety-four! Never thought I’d make it to 50.”

Outside, the early spring sun is warm but Inga doesn’t feel it. She lives in Malton’s Redstone unit, where every day is 22 C, as required by provincial rules.

To read the full article and watch the video, please click on the following link: http://projects.thestar.com/dementia-program/

Family-and-friend caregivers to receive much-needed relief with expanded supports

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The Ministry of Health is investing $75 million to expand respite care and adult day programs, helping both seniors and their loved ones, announced Adrian Dix, Minister of Health.

“Many B.C. seniors count on their spouses, children and close friends to help them stay at home, and cope and manage chronic conditions,” said Dix. “Caregiving without adequate supports can impact the whole family, particularly a person’s ability to live at home, which is what most seniors and their loved ones want. Giving seniors better options and supporting unpaid caregivers to take time for themselves is a necessity.”

Over the next three years, the Province will improve and strengthen respite services and adult day programs to support seniors and their family-and-friend caregivers. The number of respite beds will be increased, and overnight care at home will be made more accessible. In addition, the number of adult day program spaces will be increased, and the hours of operation will be expanded to provide services on evenings and weekends. As part of the work, health authorities are developing plans to meet localized needs of family-and-friend caregivers and seniors in their regions.

“The August 2017 report from the Office of the Seniors Advocate estimates that 31% of seniors had a primary caregiver in distress,” Dix said. “According to the report, the number of clients accessing adult day programs and the number of hours per client decreased in recent years. Over the past five years, there were also a significant cut in the number of respite beds. Under the direction of Premier Horgan, we are changing direction by expanding respite care and adult day programs. This plan will provide more direct care for seniors and afford family-and-friend caregivers time for themselves to reduce stress and exhaustion.”

“This expansion of respite care is a strategic investment in seniors’ care. It recognizes that caring for seniors involves caring for their caregivers,” said Anne Kang, Parliamentary Secretary for Seniors.

“These clients represent the most highly vulnerable seniors who, without caregivers, would likely need to move to residential care,” said Isobel Mackenzie, seniors advocate. “By increasing access to adult day programs and respite beds and capacity, caregivers will be better supported resulting in a healthier caregiver population, and a better quality of life for seniors.”

“This is exceptionally good news for family-and-friend caregivers in British Columbia, who provide over 80% of the care at home, often without support, and at great financial, physical and emotional cost,” Barb MacLean, executive director, Family Caregivers of British Columbia. “Having access to the right support, at the right time, is absolutely essential for caregivers to be able to continue to care without burning out or becoming a patient themselves.”

Respite services are provided at home through home-support services in the community, through adult day programs, or on a short-term basis in a long-term care facility, hospice or other community care setting. Adult day programs assist seniors and adults with disabilities to continue to live in their own homes by providing supportive group programs and activities in the community. Services may include health-care services, including nursing and rehabilitation activities, nutrition, bathing, foot care, telephone check-ins and caregiver support, including respite, caregiver support groups, information and education programs.

Quick Facts:

•It is estimated there are approximately one million family-and-friend caregivers in the province who help seniors with daily activities, ranging from a ride to the grocery store or a medical appointment to assistance with activities, such as housekeeping and yard work, managing finances, helping with medical treatments and providing personal care, such as bathing. Often the caregivers are also managing families of their own and working.

•People interested in receiving caregiver respite or adult day services, or know of someone who might be in need of these services, can contact the home and community care office in their health authority, or have a health-care professional make a referral on their behalf.

•The strategy to strengthen supports for caregivers is part of work underway to improve the quality of life for seniors in B.C.

•A total of $768 million over three years is being allocated by the Ministry of Health for investments in primary care, home and community care, residential care and assisted living.

•A further $249 million over the next three years will be provided by the federal government under the Canada/British Columbia Home and Community Care funding agreement.

Learn More:

To learn more about supports, information and education offered to caregivers in B.C., visit the Family Caregivers of BC: www.familycaregiversbc.ca/

To learn more about the Office of the Seniors Advocate report on caregiver distress, visit: www.seniorsadvocatebc.ca/osa-reports/caregivers-in-distress-a-growing-problem-2/

To learn more about B.C.’s new primary care strategy, visit: https://news.gov.bc.ca/releases/2018PREM0034-001010

Victoria increases respite care for home caregivers by $75 million

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New spending of $75 million on respite care and adult daycare programs is expected to help reduce stress on family and friends who care for seniors at home, Health Minister Adrian Dix announced Monday.

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Health Minister Adrian Dix chats with seniors at Collingwood Neighbourhood House where he joined the B.C. seniors advocate, Isobel Mackenzie, for an announcement on increasing support for those caring for aging loved ones. ARLEN REDEKOP / PNG

The exact number of additional beds for respite care or day program spots will depend on how each of the province’s five regional health authorities decides to spend the money.

The daily cost per person of an adult day program is about $120 while respite care is about  $200 a day.

Dix said the $75 million over three years will go to help reduce stress experienced by family members and friends who provide unpaid caregiving at home.

“For the one million family and friend caregivers in B.C., this will mean that if they need a break for a few hours after work or on the weekend, options will be there,” Dix said at a news conference at Collingwood Neighbourhood House in Vancouver.

“For seniors, this means they’re supported to stay in their own homes as long as possible surrounded and cared for by the people they love.”

Dix acknowledged that the additional money is in part due to the report Caregivers in Distress: A Growing Problem released in 2017 by the B.C. seniors advocate, Isobel Mackenzie. In the previous two years, the report said, the number of caregivers reporting stress had increased by two per cent to 31 per cent.

The report cited a Statistics Canada estimate of about one million unpaid caregivers in B.C.

Dix said the new money for respite care addresses what had been a reduction during the past five years of respite beds and fewer adult day programs in many communities.

Dix said additional respite care will help combat symptoms of distress in caregivers such as anger and depression. Depending on the caregivers situation, the additional respite care might provide a much-needed break of a few hours a day or more to cook a meal, go for a walk, or connect with a spouse.

“When caregivers aren’t given the opportunity to recharge, (it) can affect their decision to continue to care — and maybe look at residential care,” he said. “Supporting caregivers is crucial to the quality of life of seniors.”

Dix said in the first year, an additional $10 million will go to respite care followed by $30 million and $35 million in years 2 and 3.

Respite care includes taking the person they’re caring for to a residential care facility (nursing home) for a day or several days. A day program is where someone with dementia can spend a day getting health-care and personal services such as nursing and bathing, have lunch and take part in group activities.

The new money will allow adult day programs to expand into the evening and weekends.

Mackenzie described the $75 million in funding as a “meaningful commitment” to the caregivers of the province.

“We do know if we can relieve (caregivers) of some of their caregiving burden — not all of it, just some of it — that those husbands, wives, sons, daughters, grandchildren will soldier on and support their loved ones to unbelievable lengths to maintain their …  independence and dignity of life in their own homes,” she said at the news conference.

Barb McLean, executive director of the Family Caregivers of B.C., said respite gives caregivers relief from their day-to-day work so they can keep caring. She said the announcement also gives them confidence that they’re a partner in the province’s health care system.

“Because we’re really focusing in our health system on person- and family-centred care, that feeling as a caregiver that you’re now going to be included as partner in a way that you weren’t before is really, really significant,” she said at the news conference.

kevingriffin@postmedia.com